Category Archives: Autism/Asperger Syndrome

Triggers

Whenever I think of the run-up to my interview with Debi Gliori (almost six years ago!) I feel ashamed. Ashamed, because she wanted to feed Son and me, and I gave her a very long list of what not to give me. In a way it doesn’t matter. As I made clear last week, I can always not eat the chocolate dessert, but it’s easier not to in a restaurant where I won’t worry too much about anyone’s hurt feelings. But I know that if I’ve slaved over a hot stove to cook something for a visitor, and it turns out to be the one exact thing they simply can’t eat, we’d both have been happier if there’d been a list. Even a long list.

Do not feed Bookwitch

(And in the end Debi went for simple and utterly delicious and I can recommend her kitchen to anyone. Which she might not thank me for.)

But you’d think that when I cook my own dinner I’d know what to do. Or not to do. And I do, but sometimes I have my moments. On Monday I could either have put no onion in the soup, or used a little, frozen, onion. I put lots of fresh onion in instead and didn’t cook it enough, and as a result you are now not reading about James Oswald’s visit to the Stirling branch of Waterstones.

C’est la vie. Sleeping off migraines is all right, too. Apart from my date with James I have the time, so it could have been worse. Perhaps I’ll write myself a list to look at in the kitchen, before I start telling others what to do.

I’m reminded by what Asperger guru Tony Attwood told the audience at a long ago conference I attended. Some people have found they get a bit more ‘normal’ by following a fairly strict diet. Or less ‘aspie.’ Tony was having a meal out with aspie child author Luke Jackson and his mother. Luke followed this diet, so his mother asked for various things to be taken into account when ordering his food.

Tony said that after a while they became aware that Luke was behaving unexpectedly badly. They asked the waitress if any of the things they’d mentioned might have ended up in Luke’s meal anyway. It had.

‘We didn’t think you’d notice,’ she said.

Never Odd or Even

Eliot in Never Odd or Even probably has Asperger Syndrome. And I reckon this book will appeal to children with similar fondness for prime numbers and palindromes and stuff like that. It even appealed to me, although I had feared it might not, what with all the numbers and things to begin with.

As with other aspie books, it’s about being bullied at school and about solving a crime. The two are obviously connected.

John Townsend, Never Odd or Even

We never learn all that much about the main character, who has to be called Eliot or his name wouldn’t fit in with the palindromes and all the rest. I’m thinking John Townsend likes stuff like that too.

I didn’t set out to learn all those prime numbers, nor to decipher the anagrams, but was happy to let Eliot guide me. But I have to mention that it’s difficult to have Friday the 12th of July any time soon after a Friday the 13th. I couldn’t help checking this. And if the word for fear of Friday the 13th really is Paraskevidekatriaphobia, it will never be able to score you 44 or more in Scrabble, because the word is too long. (I might also have some doubts about the length of Summer term at Eliot’s school…)

Sorry.

It’s a short and entertaining book about a boy with special interests and his interactions with the villain of the piece, Victor. Victor is vile. Evil.

I was a little surprised by the crime, as well as its solution. I won’t say more.

The Case of the Exploding Loo

Do I strike you as a witch who’d be offended by exploding portaloos, or mentions of poo?

No? Thank you. Unless, of course, the exploding loo means one is caught short.

Rachel Hamilton, The Case of the Exploding Loo

Anyway, a book that is both humorous and has a Faraday’s cage as part of the plot, can not only not be bad, but must of necessity be pretty good. The Case of the Exploding Loo by Rachel Hamilton (she’s the one who worried about offending my sensitivities) is silly, but fun.

Noelle’s scientist dad has disappeared in an explosion in a portaloo. The police reckon he is dead, as they could only find a pair of smoking shoes, but his daughter is set on solving the puzzle and starts an investigation. She phones the police so often that they want to scream when they hear her voice.

But someone has to find her dad, and it clearly won’t be the stupid police. Sort of aided by her older sister Holly, Noelle uses her very high IQ to come up with ideas. Their mum has gone bananas, and life in the Hawkins household gets stranger every day.

She is perhaps not so skilled socially as Holly, but Noelle still finds lots of clues missed by the police. And with the help of a portaloo fan, some meccano and an old police retainer, they discover the weirdest things.

Read, if you want to find out. Might help if you are young of mind, like I am. Poo.

The Case of the Bogus Detective

Imagine the joy of finding that the trilogy you liked so much didn’t, in fact, end with the third book. There is a fourth! The last one, from what I’ve heard, but very nice all the same. (And I don’t think we should rule out more from the way things were left…)

Caroline Lawrence, The Case of the Bogus Detective

Caroline Lawrence’s very likeable aspie detective PK Pinkerton is back, in The Case of the Bogus Detective. We now know what sex Pinky is, but that only adds to the fun. PK’s long lost dad, the famous Pinkerton detective turns up, and together they set out to solve the robberies on stage coaches carrying valuables. Pinkerton Sr wants PK to dress as a girl, and goes so far as to teach Pinky how to act like one, how to walk, and so on. He doesn’t appear to have much dress sense however, which is so like a man.

Jace seems to have let PK down and the relationship with Ping sours somewhat, and Mark Twain, as he now calls himself, sets off for San Francisco. Pinky isn’t far behind, on the trail of the stage coach robbers.

So this time we have a true western adventure on a stage coach, followed by more adventures in San Francisco. We’ve heard so much about the city, and now PK can see what it’s like, as well as solve a mystery. Things are tied up most satisfactorily.

I have loved these westerns with a difference, and would happily read more. And I’ll have my own Sioux outfit now, thank you. I’ve always wanted one.

Scarlet Ibis

Scarlet Ibis is wonderful! That’s the book by Gill Lewis, as well as her heroine. They are both called Scarlet Ibis.

Twelve-year-old Scarlet is a hard-working older sister who looks after her younger brother Red, as well as their unwell mother. She loves them both, and both are rather difficult characters. The mother is immature and can’t cope. Red is on the autistic spectrum and loves birds; especially the scarlet ibis.

Gill Lewis, Scarlet Ibis

Red looks at the birds he can see from the window in their top floor flat, and once a month Scarlet takes him to the zoo as a treat. He collects birds’ feathers and is most particular about the order they are kept in, and he desperately wants one from a scarlet ibis.

But things go wrong, and the two siblings are separated from each other and from their mum. Scarlet knows she’s the only one who understands Red properly, despite what the social worker thinks, so she needs to find him again.

This is a very warm story, with less of the grey side of life than I had been expecting. Birds, and people who like birds, play a large part in the story. Scarlet makes good friends, and she discovers what it’s like to actually be allowed to be a young girl, and not just a carer. And Red is a fairly capable boy for an aspie and beautifully determined, and you can see that something will surely work out. The question is how.

I knew this would be great, and it was. Is. Read it and feel good about humanity. (And birds, I suppose.)

Al Capone Does My Homework

Gennifer Choldenko covers a lot in the third outing for Al Capone, in her trilogy set on Alcatraz in the 1930s. To begin with, there’s a terrific children’s novel. Then there’s the autism aspect, which she handles so well, fitting it neatly into the plot. Also some American history, as well as showing us the community spirit of people living close together in such an unusual place, with a bit of crime and lots of excitement added.

Not that Mr Capone enters centre stage, or anything. He just hovers in the background, somehow colouring much of what goes on at Alcatraz prison.

The lovely Moose is 13 now, and his Dad has been made Assistant Warden. This causes lots of trouble, with jealousies among other prison guards, and difficulties with the cons. Then there is Moose’s sister Natalie, who is 16 and is autistic. Her family are trying to teach her to make eye contact with people.

Attacks on people, arson, gambling and counter-feiting fill this book on childhood in times gone by, and exciting though this is, what matters is the friendships, the solidarity and the hard work it means to have Natalie in your family. Moose does so much, and still feels he is failing. He’s also falling in love, which is both easy and hard in such a small place. ‘Being locked in a shed with a girl you once kissed and your best friend who happens to be a girl is not exactly relaxing.’

Gennifer Choldenko, Al Capone Does My Homework

I know Gennifer has done a lot of research, because she says so in her notes. But it only shows in how natural the whole story feels. You end up thinking you’re there on Alcatraz, in 1930s America. I’m sorry the trilogy has come to an end, but I have enjoyed every minute of all three books. Credit to new publisher Hot Key Books for taking over, and for keeping the cover art – by Melvyn Evans – in the style we’d learned to love.

 

Tomorrow Can Wait: Exploring Europe With Our Autistic Child

When Monika Scheele Knight first told me about her book, I was only paying attention to the travelling. I felt it was a very ambitious – perhaps too ambitious – task to undertake with an autistic child. Easier to stay at home, I thought. But, each to their own.

German Monika lives in Berlin with her American husband Scott and their 13-year-old son John. Her book about travelling with John is self published (at least the English version, as I understand it), and exists in two languages. Once I’d begun reading, I had to ask her what language they use at home, feeling it unlikely they could be bilingual with a mostly non-verbal boy. Her reply was that John does understand some English, as it’s what she and Scott use, so she reckons he is a non-speaking bilingual child.

As soon as I had started reading, I also understood why they travelled, and why Monika needed to write about it. After meeting the mother of a 30-year-old autistic son who refuses to go out, effectively imprisoning her in the home, Monika vowed to travel with John to try and prevent that fate for herself. As a toddler John was reasonably willing to go out, if it was on his terms.

So she set off for Rhodes for a week on her own with John, and it went well. What I particularly like is the way Monika and Scott realise they need to take things slowly and not force John (unless absolutely necessary), which means holidays where they occasionally do ‘nothing’ or just a little, like eating lunch bought in the local shop in a deserted children’s playground.

And it’s not just about travelling. In each chapter about a different place they visited, Monika writes about John’s autism in general, how he develops, and what life with an autistic child is like in Germany (much better than in many other countries, I’d say). She muses about various theories, as well as the history of autism, and the murder of handicapped people in the war, and how people treat them when they are out and about. The older John gets, the easier it becomes for strangers to realise he’s behaving oddly because he is not normal, rather than being a badly brought up child.

John auf dem Fahrrad

(This rather lovely photo of a smiling John, in Holland, was taken almost immediately after a major meltdown, which is such an autistic way for things to work out. I have borrowed the picture from Monika’s blog, as it was used for the back cover of the book.)

You feel exhausted following the family round Europe. All the driving, or having meltdowns in airports, or moving things out of John’s reach, or stopping him from hurting himself, seem like an endless lot of hard work with no respite. And I’m sorry their experience of Sweden was so poor.

I find case histories irresistible, and this book is one big case history. Very interesting and very inspiring.